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Down Syndrome NSW e-Update February 2008 The deadline for copy for the March 08 Update is the 15th February 2008. Email the Editor: update@dsansw.org.au Click here for the Summer 2007-2008 Newsletter (e-edition) and a selection of colour photos from the print edition. T...4...3...2...1 Blast off for World Down Syndrome Month World Down Syndrome Day is celebrated on 21 March each year.
This year in a rare event it happens to coincide with Good Friday. But there's no need to panic because this year we're declaring the whole of March to be World Down Sydrome Month.
That means there's plenty of time to hold your 'T4321' celebrations. That is 'Tea for 3-21' in recognition of the fact Down syndrome is caused by 3 copies of chromosone 21.
Celebrating World Down Syndrome Month is as simple as putting on a Morning or Afternoon Tea at your home, school, workplace, club, church, local park or wherever you please, inviting friends, colleagues, neighbours, etc, breaking open the tim tams, baking some scones, or asking your local bakery to donate some lammies, putting on the kettle, and you're away.
It is also a great chance to raise a few useful dollars to support children and adults with Down syndrome in achieving their full potential. To express interest and receive your 'T4321' Kit, or to advertise your World DS Month event, just contact Steve or Priscilla by email on t4321@dsansw.org.au or telephone on 9683 1900 or 042 4044 930. Coming Events 28 March 2008
'Black Tie Ball'. A fantastic night in a beautiful location. Illawarra Yacht Club. Enquiries/bookings Tracy Barker by telephone on 02 4272 9993 or email tracybbarker@hotmail.com 2 April 2008
'On a Wing and a Prayer'. An evening with Craig Wing and friends, Pyrmont. Presented by Marxson Sparks. Entertainment: Brian Doyle. Special Guests: Russell Crowe, Morris Iemma and more to be announced. Ticketing enquiries: Steve or Priscilla by email at events@dsansw.org.au or telephone on 9683 1900. 2009 Down Syndrome NSW Calendar: Feeling fine - it's 2009 You can now submit your photos for the 2009 edition of the Down Syndrome NSW Calendar. Read more Morning Tea/support group - Coonabarabran area Tammy Barron would like to establish an informal support group for parents of children with Down syndrome in the Coonabarabran area of NSW.
Please phone Tammy on 6842 3286 or email her at tambarron@aapt.net.au for further details. Northern Suburbs Coffee Morning will be replaced by dinner at
7.00pm, Friday 22 February 2008. Julian’s, Florence Street Mall, Hornsby.
Please let Pauline Frewen know if you are coming, sowe can book enough seats! Phone 9659 7875.
Sutherland & St George Shires Our coffee mornings will continue in 2008 with one taking place each term. Stay tuned for more information - details will appear in the March Update.
My Time: Fathers Group My Time is a new national program for parents of young children with a disability or chronic illness. Fathers who are eligible for the Carers Allowance for a child under school age can join a My Time group. The My Time Fathers group is a great opportunity for fathers to get together in a relaxed informal setting to discuss issues important to men, establish networks and gather information. Read more What does it cost to raise a child with an intellectual disability? Professor Stewart Einfeld (University of Sydney), Professor Bruce Tonge (Monash University) and Associate Professor Chris Doran (University of Queensland) are currently investigating the costs, to families, of raising a person with an intellectual disability. This information will assist in future advocacy for government support. We need information from families to answer this important question. If you would like to participate in the study, or require further information, please contact Research Assistant, Sian Horstead, via email shorstead@med.usvd.edu.au or by calling 02 9351 0884.
Drive and Co-ordinate AART.BOXX 08 AART.BOXX is an innovative arts initiative that provides a platform and a voice for young artists and creative thinkers with a disability. The project has been running for two years and is developing into a high profile art event. Read more NSW Ombudsman, Community Services Division Do you work in disability or community services?
Do you help clients with problems? Maybe we can assist!!
You are invited to attend a special information forum
9.30am-12noon, Wednesday 13 February 2008 Read more 2008 Calendars Available We still have a few 2008 calendars available. $15.00 each - order form was posted with October Update, or download from www.dsansw.org.au
Early Childhood Updates: Lismore - 20 February 2008 With Judy Davidson (Parent Support Manager, DS NSW) (Parent Support Manager, DS NSW)
At Summerland EIS, Rifle Range Rd, East Lismore. 1. Early Childhood Update – for parents of children with Down syndrome aged 0 – 7 years: 9.30am -12.00pm
2. Early Childhood Update – for early childhood services professionals: 1.00pm –3.30pm
Wednesday 20 February 2008 There is no charge to participants for these events, but we do need you to register for numbers and catering. Call the DS NSW office on
02 9683 4333 to book, and/or for a flyer. The flyer is available from our website: www.dsansw.org.au Go to the What’s On? menu for the link, or call to have it emailed or posted out. DS NSW Events in Armidale: March 2008 Workshop presenters, DS NSW staff: Jill O’Connor (Information Services Manager) and Judy Davidson (Parent Support Manager)
1. Early Childhood Update – for parents of children with Down syndrome aged 0–7 years 9.30am–12.00pm Thursday 27 March 2008 Speaker: Judy Davidson (Parent Support Manager, DS NSW)
Armidale Ex-Services Club, Dumaresq Street, Armidale Cost: $22.00 per person, inc. GST 2. Early Childhood Update – for early childhood services professionals 1.00pm–3.30pm, Thursday 27 March 2008 Speaker: Judy Davidson (Parent Support Manager, DS NSW)
Armidale Ex-Services Club, Dumaresq Street, Armidale Cost: $44.00 per person, inc. GST 3. Update on Down Syndrome – for disability services providers
The latest information about the effects of Down syndrome, focusing on: health and communication. Relevant for anyone who works closely with older children, Adolescents and adults with Down syndrome.
9.30am–3.00pm Thursday 27 March 2008 Armidale Ex-Services Club, Dumaresq Street, Armidale
Cost: $88 per person (members DS NSW) or $110.00 per person (non-members) (includes GST, morning tea and lunch) Speaker: Jill O’Connor, Information Services Manager, DS NSW 4. Playing to Their Strengths A workshop for teachers and school personnel working with students with Down syndrome
9.30am – 3.00pm Friday 28 March 2008 Armidale Ex-Services Club, Dumaresq Street, Armidale
Cost: $88 per person (members DS NSW) or $110.00 per person (non-members) (includes GST, morning tea and lunch) Speakers: Jill O’Connor, Information Services Manager, DS NSW and Judy Davidson, Parent Support Manager, DS NSW 5. Communication ….. . it’s so much more than talking! A workshop for parents and family carers of children (8 yrs +), adolescents and adults with Down syndrome
10.00 am –3.00pm Saturday 29 March 2008 A workshop for parents and family carers of children (8 yrs +), adolescents and adults with Down syndrome Armidale Ex-Services Club, Dumaresq Street, Armidale
Cost: $33.00 per person (includes GST, morning tea, lunch); Adult siblings welcome – no charge This event is funded by NSW Health under the NSW Carers Program, and Down Syndrome NSW, as a component of the "All the Way" project, 2007 – 2010
DS NSW members and services in the local region have been mailed detailed flyers and registration forms Flyers are also available on request or to download from the DS NSW website: www.dsansw.org.au under the "What’s On?" menu.
All enquiries to Siena O’Brien, Carer Education Coordinator Ph. 02 9683 4333 Fax: 02 9683 4020 Email: carereducation@dsansw.org.au
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