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e-UPDATE JULY 2011 Welcome to the JULY 2011 issue of Down Syndrome NSW e-Update. All links to other documents and websites in this e-Update are active - text will change colour as your mouse passes over them, and/or the cursor will change to the hand icon, to indicate the link - click on the text to follow the links.
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![]() Down Syndrome NSW on Facebook Down Syndrome NSW information events July 2011 Growing older with Down syndrome - an information/support event for parents and family carers of people with Down syndrome 35 years and over Saturday 30th July 2011 9.30 am - 2.00 pm (morning tea and lunch will be provided) Rydges Hotel,116-118 James Ruse Drive, ROSEHILL Click here to download a flyer There is no charge for this event, but booking is essential for catering. Note: this is a repeat of the event held on 26th February at North Sydney Contact Down Syndrome NSW on 9841 4411 or 9841 4407, or email info@dsansw.org.au to reserve a place Positions vacant Down Syndrome NSW Up Club assistant - Illawarra area We are looking for a support worker in the Wollongong/Illawarra area, to coordinate a social group. For more information and job description, please contact Brooke at Down Syndrome NSW on 98414402 Information Officer A short term position to fill some temporary gaps in our Information Services (including library services) is currently available. Providing and locating information about Down syndrome, for families and other enquirers is a key part of our work. Knowledge about Down syndrome is required. People well-informed about Down syndrome are encouraged to apply. Contact Steve Clarke, CEO, Down Syndrome NSW Better Start Initiative Registrations open From July 1, eligible children will have access to new Medicare items under the Better Start for Children with Disability Initiative (Better Start). Better Start will assist children with developmental disabilities to access funding for early intervention services. Eligibility Children up tot he age of six with hearing and sight impairments, cerebral palsy, Fragile X syndrome and Down syndrome will be eligible to register for assistance. To register, children need to be assessed by one of the following: - A state territory government or equivalent multi-disciplinary assessment team. - Pediatrician - Other consultant physician For more information on Better Start, visit the initiative's new website: http://betterstart.net.au or the Department of Families, Housing, Community Services and Indigenous Affairs (FaHCSIA) website: www.fahcsia.gov.au ![]() In NSW, registration for funding under the Better Start Initiative is under the auspices of Carers NSW: Freecall 1800 242 636. However, Down Syndrome NSW has been informed that with an estimated 6000 families eligible from 1st July delays are to be expected. Initially, it is likely priority will be given to older children eg 4 yrs+ , and those with an urgent need for services – families with younger children already accessing early intervention are advised to wait until the initial rush has passed. Carers Australia (the registering body) has released an amended Fact Sheet on the Better Start for Children with a Disability Initiative. The amendment addresses an error about the upper age limit for registration in the original document: The funding must be expended by the child's 7th birthday, BUT REGISTRATION MUST OCCUR BEFORE THE CHILD’S 6TH BIRTHDAY. If you have any general questions or comments about Better Start you can forward these to the Parent Support Team at Down Syndrome NSW on support@dsansw.org.au, who will collate inquiries, get responses, and inform families of those responses. Mid Year Appeal supporting Down Syndrome NSW You may recall receiving our mid-year appeal letter in the post recently. If you haven’t had the chance to pledge a small gift as yet (and can afford to do so), we would greatly appreciate your urgent help in allowing us to continue the important work we do here at Down Syndrome NSW. To send your donation today, please visit: http://donate.downsyndromensw.org.au We are so grateful for the ongoing support of our members! Important Notice Regarding Memberships and Donations If you have recently paid your membership or made a donation by electronic funds transfer (EFT) and have not received acknowledgement, it may be because you did not include a payment reference in your transaction. When making a donation or paying your membership via EFT, please ensure you either call Angela or Sue on 02 9841 4409 or email admin@dsansw.org.au to let us know that you have transferred funds so that we may issue you with a receipt. Coffee mornings, playgroups and other regular gatherings for families Sutherland Shire and St George: Family Picnic
Key Word Sign Group Monthly Workshop: Hastings district - Wauchope Everyone is welcome and please feel free to pass on this information. We have lots of fun, it is easy to learn – we play games, speak and sign, sign and play and it doesn’t matter if you know 1 sign or 30 or 100 you will learn about 20 – 30 new words every meeting or get to practice some forgotten signs.
Down Syndrome NSW (Hunter) Friday, 8th July: Wallsend Diggers Outdoor play area Contacts:
My Time Green Valley - Liverpool area
Riverina - Wagga Wagga district
My Time Merrylands During this time, the children get to play, supported by our play helper, with a number of age-appropriate activities that are set up each week.Younger parent especially invited. Fridays from 9.30am to 11.30am (during school terms) To register or for further information
My Time Narellan
Down Syndrome Illawarra
Contacts:
Activities and events for people with Down syndrome various age groups, activities and locations Sydney Community College has announced next term's short courses for people with disabilities, starting in July. Courses are offered through the Inclusive Community Education Program (ICEP), a pilot program funded by the Department of Family and Community Services, Aging Disability and Home Care. ICEP is a flexible respite program that aims to give carers a break whilst providing unique recreation and social opportunities for adults with a disability. To be eligible for a place, each student must: - Have a disability Enrolments for next term's courses are now open. All courses are free. Experienced tutors run the classes and two support facilitators are on hand at all times. Contact: Duncan Rose Or email, phone or fax to book in your courses: Dance to the Nines Event! Everyone Can Dance Social Event! Special Olympics - Sydney Hills Region Fitness, Fun and Athletics: 4-5 pm Thursdays Basketball: 6.00pm – 7.30pm Wednesdays Soccer: 3.00pm Sundays Contact Sports Co-ordinator, Kerry Nethery on 0403 786 818 or New bowling group for secondary students: Eastern Suburbs Up, Up Toastmasters City 2 Surf for Down Syndrome NSW City 2 Surf has become the event on the Sydney calendar... fast or slow, young or old, if you haven’t ‘city to surfed’ before, why not make 2011 the year! Another great reason to take part, whether you’re a first timer or a seasoned pro, is that it’s a great fun and easy way to support people with Down syndrome and their families by selecting Down Syndrome NSW as your charity. Just go to www.city2surf.com.au and choosing Down Syndrome NSW from the drop down list of charities. You can set up a ‘hero page’ or have one set up for you and email friends, family and workmates so they can cheer you on. Congratulations to those earlybirds who have already registered for this year’s City2Surf, have started their training and set up their ‘hero’ pages to raise valuable funds for Down Syndrome NSW... Richard Struthers: http://everydayhero.com.au/richard_struthers_4 Save these dates for Buddy Walk! 2011 dates confirmed so far
Entertainment Book 2011 - 2012 Order now
The Entertainment Book is a restaurant and activity guide that provides special 25-50% discounts and 2-for-1 incentives from many of the best restaurants, hotels and attractions. It represents great value for family entertainment. The featured restaurants and other businesses do not pay to be included, they are selected based on awards, reviews and personal recommendations. See the Entertainment Book web site for more information. You can order localised editions including Sydney, Sydney Greater West, Sydney North, Canberra, Newcastle/The Hunter, and there are interstate and New Zealand editions that would make great gifts. 2011 Down Syndrome NSW calendars now free ... ... make the most of the second half of 2011 with a free 2011 calendar! Email admin@dsansw.org.au or call 9841 4444 Ongoing fund raisers and support for Down Syndrome NSW and families We are very grateful for a number of initiativesthat provide valuable year-round fund raising and support to families, through business activities.
11th World Down Syndrome Congress 2012 Cape Town, South Africa Down Syndrome South Africa is proud to announce the There will be a Pre-congress Synod for young adults with Down Syndrome on the 14th August. The main congress will be held over 3 days 15th – 17th August and will feature international key note speakers presenting the latest up to date information. There will be a one day post congress workshops on the 18th. These workshops will focus on Early Intervention, Education and Employment. Disclaimer: Several of these notices relate to events and services provided by other organisations and individuals. They are presented for the information of members and other readers only - they do not represent an endorsement by Down Syndrome NSW of the products, events, services, organising bodies or content. Person Centred Approaches Consultation Summit NSW Government OBJECTIVE: To launch the NSW Government person centred consultation process and undertake the first stage of feedback on some of the key issues Thursday 7 and Friday 8 July 2011 Acer Arena, Sydney Olympic Park, Homebush you have a disability Free – no cost to attend summit Register online and get further about the program, venue, accommodation options, transport and other information here. This summit is just the start … the NSW Government is holding this two day summit to start the important process of consultation. If you can’t attend, this is not your only chance to have a say about how we can build a disability services system that puts the person at the centre. You will be able to attend one of more than 100 consultations to be held in the coming months around NSW. You will also have the opportunity to submit your ideas online soon. Respecs importing Erin's World frames Respecs is a Queensland company set up to import the ‘Erin’s World’ range of glasses frames from the United States. There is a range of shapes and colours available and can be seen by visiting www.specs4us.com Parents and optometrists who are interested can contact Respecs for more information and a brochure by phoning 0417 441 844 or via their Facebook page: Studio ARTES at Parliament House Sydney Studio ARTES Artists Exhibition Works by selected Studio artists in the Fountain Court of NSW Parliament House, Macquarie Street, Sydney 5 - 26 July 2011 Key Word Sign Basics Workshop for parents and professionals A few places are still available at this workshop: Saturday 9th July, 2011 Fee: $100 for professionals; $50 for parents This full day Basic workshop covers the use of Key Word Sign and natural gesture to assist individuals who have difficulties with receptive and/or expressive communication. Come along and learn how to use Key Word Sign, natural gesture and other strategies to communicate with your clients or child. For further information and to register, contact Meagan Rudd: P 0410 691 381 E meagan.signon@gmail.com RSVP: 6th July, 2011 Webinars: seminars online International offerings A number of webinars (seminars conducted via the internet) on a wide range of topics about people with Down syndrome are coming up, from international organisations. Some offer live sessions during the day for Australian time zones, others are post permanent links to video of the presentations. Most make documents about the content available online. Some are free, and there is a small charge for others. Down Syndrome Education International To find out more about the trial and our preliminary findings, join us at a free online event in July: What's On YOUR Plate? And just WHOSE PLATE are we talking about? Healthy lives - healthy eating - health weight - all take work. The work is not limited to the person learning! It involves everyone: Mom, Dad, siblings, direct support providers, teachers, friends, and more. Presented by Joan Medlen, JEM Communications and Phronesis Publishing (author of The Down Syndrome Nutrition Handbook) Saturday, July 30, 2011 Click here to register http://plate.eventbrite.com/. Webinar 'seats' are limited. Proloquo2go The producers of the very popular communication app Proloquo2go are planning two series of free webinars during the nirthern hemishpere summer (commencing later in July) - one for professionals, and one for families. Descriptions of the content, the schedules and online registrations are available here. Healthier Lives Forum - Albury NSW CID Strategies for improving the health of people with intellectual disability. The day is for family members, carers, people with intellectual disability and service providers. Sessions will include: Person Centred Active Support – One Day Workshops Regional NSW The Australasian Society for Intellectual Disability (ASID) will be presenting a one day interactive workshop on Person Centred Active Support and how it can be incorporated into the everyday support of people with disabilities and the benefits that are being achieved by people with disabilities. Active Support is a way of organising how support is provided to people with disability in community based accommodation and similar services and provides the tools to implement true person centred planning in meaningful everyday activities. WAGGA WAGGA BATHURST Cost: $55.00 (inclusive GST) To reserve your place, please email to request a registration form to: Tiana Sartor, by 18th July 2011, debtors@kurrajongwaratah.org.au Baby Sign Playtime! For babies with and without Down syndrome A fun play session where parents and babies can learn baby signs through songs, stories and games. $150 per term, with eight sessions lasting 45 minutes. Beginning in July 2011 in various Hills district locations.
Transitioning from school in NSW ... and school leaver expo events School leaver "expos" are one useful strategy for giving families access to a lot of information and local options for post-schoolprograms and opportunities. They will usually be advertised through your school and other local services. Information about the two NSW government funded post-school programs for school leavers with disabilities - Transition to Work and Community Participation - is available from the Ageing, Disability and Home Care website: look under the 'for individuals, families and carers' menu, in 'support for people with a disability', then 'for school leavers'. You can access all documentation for both programs, and download lists of service providers in each region. Links and contacts are also provided for further information directly from ADHC. Family Advocacy runs information sessions for families about both Transition to Work and Community Participation, and about how they can be managed by families, from time to time, across NSW. School Leaver Expos/Information events Sydney Region Wednesday August 10th 2011 Two sessions will be run to enable working parents to attend. An earlier session will take place between 4:00 pm and 6:00 pm. A repeat later session will be held between 6:30 pm and 8:30 pm. The focus of the forum includes the following; The speakers will be drawn from a range of backgrounds and organisations including TAFE, disability employment, apprenticeships, government etc.
Family Advocacy Workshops Sydney and regional NSW After school — what then? Phone:02 9869 0866 or 1800 620 588 (NSW non metro callers). Email: workshops@family-advocacy.com Resourcing Families is an initiative of Family Advocacy that provides information and ideas about building informal supports, establishing networks and developing, implementing, directing and sustaining individualised, self managed supports. Special Education iPad users A new Facebook page Interest continues to build in the use of devices such as iPad, iPod Touch and iPhone, and their applications by people with disabilities. Communication applications are particularly prolific. It is becoming increasingly useful to select a number of 'clearing house' sites to keep track of what available. A new Facebook page provides information on special education uses of the iPad - both software and hardware accessories: Special Education iPad Users. The Big Event Presentations now available Presentations from the Big Event (held in May) are now available online from In Control (you might need to register - free - to access the files). In Control has recently established a Facebook page. You do not need to be a Facebook account holder to access it. Would you like to take part in a research study? - now inviting participants up to 60 yrs of age From time to time, Down Syndrome NSW is able to put researchers in touch with people with Down syndrome and their families to help with recruitment of participants for their studies.These studies are currently recruiting: Memory development in preschoolers and adults with Down syndrome - University of NSW 2011 Dates to save ... ... later in 2011 Developmental Disabilities and Challenging Behaviour: Research to Practice and Policy This conference will benefit those working with people with developmental disabilities in community and health settings, as well as research students and academics, and clinical practitioners. Registrations will open in July 2011 Enquiries can be directed to: Imelda Noti Imelda.noti@sydney.edu.au or Prof. Stewart Einfeld, Convenor stewart.einfeld@sydney.edu.au More information can be found here People with Disability Australia News service on all matters disability People with Disability Australia now provides a daily news service online, through its website. Articles are provided from Australia media. Click on the ‘daily media roundup’ button on the home page: www.pwd.org.au |
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